A high uptake of radioactive iodine suggests Graves' disease. Serum folate levels was :17.1(2.0-18.7)b12 vitamin levels was :565 (197-771)ferritin levels was :175.9(30-400)red cell count was :4.87(4.25-5.77)white cell count was :5.6(4.5-13.0) I dont understand how this happened sir ? So for the last 6 mos Ive had to take Levothroxine. The issue now is that I have no refills on the levothyroxine and have not had any blood work in about 2 years. Consuming excess iodine: If you're at risk for hyperthyroidism and consume too much iodine (through your diet or medications), it can cause your thyroid to produce more thyroid hormone. SHBG :43 (16-55) Hello, not sure if this post is still active. No. Nevertheless, hair loss can be associated with changing levels of thyroid hormone, and may be experienced by some patients with hypo or hyperthyroidism. I will know more in a few days when he has all the pathology reports back etc. I had my RAI 3weeks ago and they did not gave me a pros and con what to expect after. Fact sheet: guidelines for patients receiving radioiodine I-131 treatment. Life has been very difficult as I basically go very few places now and live a life with little social contact. That may not be the best decision, but I was becoming very depressed. So when you take radioactive iodine your body will automatically take it up and store it in the thyroid gland. Iodine is found naturally in some foods and is also added to salt that is labeled as "iodized". I eat a diet free of inflammatory foods and exercise 3-5 times a week, but I cant get my weight to budge more than 5-10 pounds. Wash your clothes and dishes separately from your family's so you don't contaminate their belongings. 3 Anaphylaxis is a type of allergic reaction. I have been battling back and forth with weight gain and hair loss, mild I have the symptoms of hypo not hyper, is she wrong? The good news is that not every single person who gets RAI will necessarily gain weight. To increase the effectiveness of your upcoming radioactive iodine therapy, you may be prescribed a low iodine diet. You're given a drink or capsule that contains iodine and a low dose of radiation, which is . If we extrapolate out this data then it means that on average 30% of all people who undergo RAI can expect to gain some kind of weight. Improving gut function can be done through diet and supplements. Because of this . I had RAI treatment nearly 2 years ago, and deeply regret it. If your head and scalp are exposed to radiation (usually after a brain tumor surgery), it can affect the hair follicles and cause hair loss while the rest of the body may be unaffected. My hair is the one and only thing about my looks that is considered beauty. I eat three meals with three snack times. . I had a lot of hair loss right after my thyroidectomy. Theres no way to tell if your eye symptoms are related to your thyroid without first trying to optimize your TSH (which should be your next step). Protecting Your Family After Radioactive Iodine Treatment. Anna Thomas. Most people who get radioactive iodine treatment do so because they are considered to be hyperthyroid (sometimes people get RAI for thyroid cancer (5) but most people get it for hyperthyroidism). It is what it is. They all tell me Thyroid Cancer is the easy cancer. I would actually think about taking chances with the cancer instead of gaining weight. It may sound counterintuitive, but youll understand why you might want to after your procedure. Free T4. Leave a Comment Cancel Reply . Get my free thyroid downloads, resources, and PDFs here. Both hyperthyroidism and hypothyroidism cause intolerance to heat and cold respectively, so that isnt uncommon but what is uncommon is to experience those symptoms after RAI. My endocrinologist said he never heard someone like that after RAI, but i asked my cousin who is a family doctor back home that you will expect that will happened to you. Another doctor wants my temp and glucose readings, temp shes ok with once or twice during the day. I also used Nioxin shampoo. It may take some trial and error but 80% of patients should approximate normal symptoms over a few months. I keep telling them that I dont feel so good flaking nails, dry skin, fatigue, weight-loss resistant with brain fog. Hopefully, you're now a lot closer to figuring out what color you should dye your hair. Please give me your thoughts. Hello Dr .Child Before you or any family members have RAI treatment, it is strongly recommended that you read up on post-RAI guidelines and speak with your healthcare providers about how they should be applied to you. Can You Eat Soy If You Have a Thyroid Condition? If you havent already then you would probably want to make sure it isnt your other hormones causing these issues. All rights reserved. Also learn more about our which will minimize the contamination in your home's isolation room. I had severe and sudden weight loss along with many other troubling symptoms. This is more common if you still had a large part of your thyroid gland when you have radioactive iodine treatment. This is possibly TMI but any guidance and suggestions would be greatly appreciated. Because of PTC, I had a total thyroidectomy two weeks ago and now on Levo. And that training tells me I wont be ready to go back to work that afternoon. Your article is quite interesting. Will you be able to maintain your current weight? Endocrine Today | A 25-year-old woman was referred for radioactive iodine remnant ablation for multifocal micropapillary thyroid carcinoma. I am already over weight and working on losing it. When the gadolinium is injected, it is normal to feel coolness at the site of injection, usually the arm for a minute or two. What can I be looking at regarding weight gain. The trip will be about 45 minutes each way. A single injection is given subcutaneously (i.e. Fifteen years ago diagnosed with hyperthyroidism and had RAI. depression, brain fog and other symptoms for years now. I can barely eat . The radiation comes from a radioactive substance called iodine-131. When you are given radioactive iodine, it is taken up by cancer cells and destroys themincluding those that have spread to the lymph nodes or other parts of the body. Should you expect to live a normal life afterward? So I had the ablation without much research on my own, and now Im at the highest weight of my life and miserable. ", Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. You can opt-out at any time. You usually take radioactive iodine as a capsule that you swallow. And was doing well on a vegan/plant based diet. 3 days after that I started to become sick after I ate an unable to sleep. Please help me what to do with this. Because your thyroid gland concentrates and stores iodine in your body. The best course of action is to contact the doctor that was responsible for your procedure and let them know about your symptoms. Apply the mixture to your hair and leave it in for 20 minutes. Free T3. who gave me 150 of Synthyroid. Can You Get Everything Your Thyroid Needs From Food? NOT GOING TO TAKE MORE PILLS! Some on the list I cant take to begin with, iron is one, when I take it, no matter how strict I am about taking it so many hours before or after other meds and meals, I still puke it up about fifteen to twenty minutes after taking it. Iodine (chemical symbol I) is a chemical element. Catnip works for lighter colors. You usually have radioactive iodine as a capsule or a drink. Unfortunately, the best way to prevent weight gain after RAI is to go into the procedure at a normal weight. Any help will be appreciated. I am now 54 years old. Hi, Dr. Westin ChildsI had Graves disease and had the radioactive iodine treatmentyour information was so good to read..weight gain is becoming an issue I just watch what I eat and exercise as much as I can I also have osteoporosis but managing well so far Thank you so much for your information. Now that you are considered to be hypothyroid there is a world of potential therapies, supplements, regimens, and protocols that are available to you. MY QUESTION IS AM I ABLE TO WORK ABROAD WITH THIS. Radioactive iodine. Family Medicine 59 years experience. However, it affects only the body part that is being treated with radiation. Taking a safe nascent iodine supplement may boost hair health and growth in the . P.S. My supplements can help but they will not take the place of thyroid medications like levothyroxine. and I'm proud to say that over 80,000+ people have used them over the last 6 years. Havent met yet my endoc after the RAI. You wont be able to sleep next to people, go to work, prepare food for others, go into public places, fly on an airplane, ride a bus, share utensils with others, sit on a public toilet, and so on for about 1 week (3). This means avoiding public transportation, hotels, carpools, and in some cases, your . Along with a pain and numbness in my right hand. It doesnt appear that the first treatment was sufficient to destroy the hot nodules (or there is some other issue). Radioactive iodine can also show whether cancer has spread beyond the thyroid. Then I get up at 7AM and during that first hour get my daily weight after I void and empty my bladder, and strip down for a true body weight. Thank You. Thank you, {{form.email}}, for signing up. Papillary and follicular thyroid cancers develop from follicular cells, which absorb iodine. Doctors made me think it was my only option at the time. Its drastically changed my life. I dont have another drs appointment till after the holidays. And in addition to going back to surgery for the left lobectomy, to expect to be on the Radioactive Iodine therapy. Instead, you are now hypothyroid (7) (meaning you dont produce enough thyroid hormone on your own). Its the working hard for absolutely nothing that I dont want to do! The risk of developing a secondary malignancy due to radioactive iodine therapy . Sign up to receive 20% off your first order. Anecdotally, youve probably already heard stories about people gaining weight after their procedure. Redness, tired eyes, they were seeing double, and not accommodating going from reading to distance. https://www.restartmed.com/product/t3-conversion-booster/ For more details, see our Privacy Policy. Because of this, people may experience symptoms that may lead them to want to restore whatever thyroid function they can. June 7, 2022 . Very small amounts of iodine may also be taken up transiently by . This content is strictly the opinion of Dr. Westin Childs and is for educational and information purposes only. Eat breakfast. It turns out that thyroid hormone is actually necessary to not only thrive in life but also to survive. 8.1, Because I began feeling very unhealthy this week further blood tests were done. To decrease the spread of radioactivity: If possible, use a separate bathroom. So, when I get up at Midnight unless I stay up that late, I get a full set of VS plus my glucose readings, and take my Levothyroxine. I feel horrible. I was normal weight and now frustrated to be 30 pounds overweight. If you have questions regarding your health you should seek qualified information from a medical professional or your doctor. I am feeling all the emotions you described, depression is a big one, but all anyone is interested in is giving me another pill to make me happy again. I have battled my weight since I was a child, I had dropped from 400 pounds to 210 about six years prior, and was afraid all my efforts would be lost now. Because the radioactive iodine used (known as iodine 131) may expose those around you to the effects of radiation (and theoretically negatively affect their thyroid glands), you will be given guidelines on how to prevent such exposure. Can Hashimotos Be Reversed? (former Osteopathic Physician). I know, I know, I shouldnt be so vain. This distinction is actually quite important. Do not share any towels, razors, toothbrushes, cups, spoons, forks, or dishes. I cannot take anything other than porcine thyroid with rice flour as filler (compounded). If you find that your TSH is high or that your free t3/free t4 is low, then this may be the cause of your symptoms. The thyroid gland relies on iodine to make the hormones necessary for the growth of healthy hair, teeth, and bones. Dr.DanielleWeiss is the founder of the Center for Hormonal Health and Well-Being, a personalized, proactive, patient-centered medical practice with a unique focus on integrative endocrinology. My only option for help is the ER which is somewhere I dont want to go with all the crap a going around. olive oil, vegetable oils and nut oils. Small amounts of I-131 may also leave through your saliva, sweat and feces. I had RAI 20 plus years, I am 56 and my numbers are good. If you have heard of this before is there a natural vitamin or something that will help me control the heat in my body? I have not lost any weight. Hi, The good news is that this radioactivity does fade over a short period of time (usually 5 to 7 days) but the bad news is that you need to stay under certain precautions during this time. 2 capsules of T3 Conversion Booster daily (important if you take T4 only medication!) Want to know why I'm so passionate about these topics? I saw 2 eye professionals. However, I havent been placed on any med after treatment what is your professional opinion. Radioiodine treatment avoids surgery, anesthesia, and anti-thyroid drugs. I must admit I feel like a lab rat at times with all the tests and trials. They said I have HYPERthyroidism but she said I have a HIGH metabolism which doesnt make sense?! 8PM HS snack and VS and glucose readings. And to key to getting there is to understand what happens to your body after this procedure and how it influences your thyroid function. Can you tell me about when I will start medication, or should I be tested first? It's permanent; once you take the iodine capsule there is no changing your mind. If below 100 I will consider a snack of some nuts or piece of fresh fruit. It seems though that people who are already overweight BEFORE their procedure probably have the worst outcome and tend to gain the most weight compared to others. With that in mind, lets jump into what you should expect after your procedure. The recommended timeframes are based on the size of the dosage you are receiving, so discuss the specifics with your healthcare provider prior to treatment. As I said earlier not everyone will necessarily need thyroid medication after they ablate their thyroid. Yes, absolutely. Now the top of my hair is thick and fine and the back of my hair is thick and curly it has a little bit of wire feeling to it. You can get by this side effect by simply banking some of your sperm prior to your procedure and then using that sperm at a later date with procedures such as intrauterine insemination. #2. Iodine is also sometimes prescribed as a topical treatment for certain conditions that cause hair loss on the scalp. The only other condition that causes heat intolerance that comes to mind is menopause and perimenopause. Some people may have a feeling of tightness or swelling in their neck for a few days after treatment. Hyperthyroidism, or an overactive thyroid, is a common disease of older cats. I know some people contribute this I have expressed my symptoms to the dr and she did a panel revealing my TSH to be 3.687. Not to mention the radiation! And how can I persuade my GP to think about more than a TSH reading? Radioactive iodine works by taking advantage of the physiology in your body (1). Society of Nuclear Medicine & Molecular Imaging. I would take a look at this article for more information on why people gain weight after RAI: https://www.restartmed.com/hyperthyroidism-weight-gain/, You can also find some tips for weight loss in this article (even though it is more specific to thyroidectomy): https://www.restartmed.com/weight-loss-thyroidectomy/, After the treatments, How fast do the weight begin to add in the pounds. Its normal in the sense that ALL post RAI patients will become hypothyroid but abnormal in the sense that you should NOT feel poorly if you are treated properly. They said it was So far I feel strong and as I did before. But, if I was being honest, I think that most people should not rely on the possibility of restoring much thyroid function after their procedure. After all, didnt the radioactive iodine work to reduce your overall thyroid hormone production? Is there anything I can do to protect myself as I am driving her. To keep my glucose readings at or below 120, the desired reading by my PCP and endocrinologist, I am strict to my vegan/plant based diet, and consume 600 to 800 calories per day. Its been a week after I underwent RAI 14 years ago for Graves disease. It was not and I have been searching for help ever since. I am now living in the Midwest originally from Iowa. ordinary table salt and sea salt. After that they again were having the same symptoms. If you fit into this category then you may not need to use thyroid medication afterward. This comes in the form of a simple hormone medication that you can take each and every day to help normalize your thyroid hormone levels. relative viscosity of nylon 6; predictive index cognitive assessment answers; why do baseball players spit so much Will it . I had RAI treatment 4 weeks ago 29.9 mci due to hyperthyroid hot noduals. 1. I was being treated for hypothyroidism and graves . 20 Thinning hair. One study looked at 157 people and tracked them both before and after their procedure. My doctor has changed my meds 5 times I was doing better if my medication was a little on the high sideI had started to lose wait, had more energy & the best ever NO SWEATS, but she said no, WHY! The relationship between your thyroid to your hair growth aside, iodine . Very small amounts of radioactive iodine may be absorbed by your salivary glands, and the lining of your stomach, which may cause side effects such as a sore throat or hoarseness. There's no medical indication to support this as a benefit, and as we mentioned above, excess iodine could cause much bigger problems in the long run. Once your thyroid is destroyed, it will no longer work exactly as it used to. 08 July, 2011. Not everyone gains weight after RAI, if thats what you mean by treatment but if you are going to, it will start within 4-6 weeks of the procedure and may continue for several months. The amount cooked green vegetables. My symptoms include very dry skin, heart problems, severe pain, muscle problems, joint issues, sometimes brain fog, hair is brittle and dry, constipation, stomach issues, basically nothing is right since the treatment. Affected cats produce too much thyroid hormone. How will I know if I am producing my own thyroxine? . Calculating the half life of radiation, it will be a couple months before I can be around nursing home residents and pregnant women, and each and every nursing home has several pregnant women on each unit and each shift. Have you ever heard of this before? The list includes optimal ranges, normal ranges, and the complete list of tests you need to diagnose and manage thyroid disease correctly! The study followed people for 26 years after two or more treatments. Your TSH should always drop as you increase your thyroid dose and you should aim to get that TSH around the 1.0 range (which is considered normal in healthy adults). Importance: Patients who undergo radiographic studies with contrast receive an enormous bolus of iodine. Radioactive iodine (RAI) is a treatment that uses radiation to treat thyroid cancer. So, I have to laugh at your 80 to 90% back to a normal life. Since the science is inexact there are two ways of approaching the treatment. Iodine, an essential mineral, may affect hair health and hair growth through its effects on thyroid function. This is an extension of what weve already discussed but its worth spending some time on this specific point. If you are unable to get ahold of them then it may be necessary to go to the ER. Receiving intravenous iodinated contrast (iodine "dye") may also cause hyperthyroidism. Um, Im a night shift nurse on a dementia unit in a nursing home, would you want me taking care of your loved one and have the brain fog, the jitteriness, the irritableness, and depression? Another problem Ive faced is I ask one doctor about this or that feeling Im having and I get told that doctor doesnt deal with that have to tell the other doctor, I tell the other doctor and they tell me I have to tell another doctor because they dont deal with that issue. Methimazole Side Effects You Should Be Aware Of (What to Expect), Hashimotos vs Graves Disease: Differences & Similarities, read more about my own personal health journey, free thyroid downloads, resources, and PDFs here, https://www.restartmed.com/hyperthyroidism-weight-gain/, https://www.restartmed.com/weight-loss-thyroidectomy/, https://www.restartmed.com/thyroid-doctor/, https://www.restartmed.com/thyroid-hair-loss/, https://www.restartmed.com/hormone-mastery/, https://www.restartmed.com/methimazole-weight-gain/, https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/, https://www.restartmed.com/product/t3-conversion-booster/, https://www.restartmed.com/product/thyroid-adrenal-reset-complex/, https://www.restartmed.com/product/leptin-resistance-rx/, https://www.restartmed.com/normal-thyroid-levels/, https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/, https://www.restartmed.com/levothyroxine-thyroidectomy-patients/, https://www.restartmed.com/weight-loss-after-thyroid-removal/, https://www.restartmed.com/hypothyroidism-diet/, https://www.restartmed.com/product/thyroidectomy-rai-bundle/, 3 New Thyroid Support Supplements: Thyro Fuel, Thyro Biotic & Hashimotos Ab Rx, The 50 mcg Levothyroxine & Synthroid Medication Hack. I am getting ready to have thyroid removed due to cancer. I dont see such good numbers. I also noticed my left leg larger than my right, so I do a daily measurement at mid calf before I eat or drink anything. When we are deficient in this nutrient, the health of our hair is affected, leading to hair weakness or even total hair loss. Many thanks in advance for any help. They do this by either stopping your oral thyroid medication or giving you thyrogen. 12 noon, lunch and VS with glucose readings. You probably will not feel sick during this time, but these precautions are in place to prevent you from accidentally harming another person! I was put on Levothyroxine 175, then when I met my endocrinologist, by that time TSH levels had dropped some so Levothyroxine down to 137. Any advice . Image: Shutterstock. I am going in for radioactive iodine treatment next week and wanted to ask what the best diet plan is that can stop me gaining more weight and help me to reduce my bmi. The answer is maybe, and it depends on the person, how much damage was done to their thyroid, and other factors that arent always in your control. Like the effects of chemotherapy, hair follicles and new hair are more delicate and prone to . It really depends on whether or not your entire thyroid gland was destroyed. This isnt always true, but it is true for MOST people. For most people, this means that you can expect to live at 80-90% of your normal. I know they are going to try to drop me further. I know this post is older but I am considering radiation! Many clinical studies have also confirmed that weight gain after RAI is a real risk. Neck tenderness and swelling. How is this happening? Hives. Graves' disease is an autoimmune disease that leads to overactivity of the thyroid gland (hyperthyroidism). Radioactive iodine does not produce hair loss. Thank you. If so, what are you struggling with? Everybody tells me that my thyroid being killed should have nothing to do with the heat affecting me like it does. and seriously lethargic?! I love to write and share what I've learned over the years. But over the past month I see my weight dropping a half to a pound daily.
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